Jasan has been going to the same public school since the age of three. He is now six. For the past two years he has been in the autistic program within the public school.
In the last IEP meeting we had, the team that works with him felt that some of Jasan’s behaviors were beyond what they were able to deal with. Destructive behavior without any reasonable or predictable antecedent. This is different from the year before and they feel like they are at a loss, therefore, the suggestion was made for him to be transferred to a therapeutic day school where they work with kids that are in a similar situation.
I was not averse to that recommendation. I want whatever is best for my son. I will do whatever it takes without hesitation. So, we (my mom and I) checked out the schools that they recommended and decided on the one that felt like it would be the best for him.
After the first visit, I was not expecting the emotions that arose within me. I was crying the whole way to work after our morning tour of the first school. Why was I feeling sad? Was I scared for him? Is this another feeling of loss to experience of a mom of an autistic child? He can’t make it in public school?
Probably all of the above, but I thought I was stronger than that. I thought, especially knowing the way I reacted to the idea from the team to send him elsewhere, that I was cool with it. NO big deal. It would be better for him.
During the second school tour, I felt good. In comparison to the first tour, this school kicked ass. I liked how the principal presented their mission and how he described the way the try to really understand why kids have the behaviors that they do. Actually getting to the root of the issues. Again, when I left, that strange wave of sadness took me down.
I have vivid memories of separation anxiety with my mom. BIG TIME. Almost debilitating to me. It was a horrible feeling that I wouldn’t wish on anyone, and I can see some of that in Jasan. I see a lot of similarities between him and me. Parts of little Heidi; emotional behaviors in my childhood that give me anxiety just thinking back that far. Gut wrenching feelings. In all honesty, that scares me.
I don’t think that he fully understands that he will be going to a new school in a month. We visited the new school (which upset him very much because our morning was out of routine) and once we got there, he seemed okay. Timid, but going with the flow.
In my mind, I was sad for him the night before. I was explaining what the morning would look like. The tears and the begging “I just to stay at (his current school)” was making my heart hurt. I don’t think I have ever loved so much to where my heart literally feels like it is being crushed to bits when he is sad. The thought of this transition and his discomfort is pretty paralyzing to me right now. I did not expect these feelings at all.
I get sick to my stomach and angry sometimes when I hear parents that have kids (that transition with no issues) say, “Kids are resilient. He will adjust fine.” I have no doubt that eventually he will be in a new routine and all be will okay. But, the transition may be something that creates distress inside that he may NOT forget. That happened to me. I didn’t forget, and it made a difference in my life in some respects.
I realize I cannot control every aspect of his life. I cannot save him from pain; from sadness. Again, having a child is such a lesson in life. Oh, letting go of control. That is hard one, especially when it has to do with what he is exposed to out of my sight. He is the love of my life and the closest person to my heart. Autism…ugh. He doesn’t tell me what happens play by play at school or when we aren’t together. He doesn’t share much at all. I am not sure he can yet. That is always something that I have struggled with. It’s really tough.
Today, after the visit to the day school with Jasan was rough for me. I don’t like the idea of him being so far from my office every day. Right now his current school is 7 minutes from me. Sometimes I think I have separation anxiety with him; there are days when I long to see him and can’t wait to be with him again. <3
This is a lot to take in. For him, once he starts making the change. For me, taking in all of this new information and watching him go through this move. He needs to go to a special school and that is okay. It is not what I envisioned for him, but again I have to change the expectations in my mind.
Why is it so hard to just not have expectations? It is impossible.
I want him to be successful. I want him to be able to hold a job and be independent. Ii hope he is a scientist or a sound engineer…whatever his dream ends up to be. I want him to thrive in this life. I hope he finds the perfect woman who understands him like I do and that they are able to have a love that is beyond measure within a fulfilling relationship.
These are expectations I have for his adulthood because I love him so much.
If life takes a detour to get him there, then I guess so be it. This is my lesson to go with the flow and let go of my childhood memories of anxiety. At least I know how to spot it and can hopefully help buffer it for him. The feelings of anxiety and sadness are going to come up for me in the days ahead. I will try to keep my thoughts positive, but I need to get my feelings out as well.
I want him to FOREVER know how much my heart LONGS for him, and to know I could inhale him I love him so much. 🙂
Aunt Katie says
Oh the anxiey. I remember my separation anxiety too. It was devastating. I’m not a mom. Not brave enough. Love is too powerful. Be strong. He is a force. And you are transformed. I am so in awe of the love I see. Thank you, always, for sharing your life and love with such honesty.
Heidi Allen says
Tania Gibson says
Great post Heidi. I get it, the pain, sadness, hurt, the unknown….for me, my oldest has bipolar disorder and some disassociation and I spent years of searching, trying to make things the best for her. And in the end, the only one who can make it perfect is the Lord. This is building in you a trait of compassion that not many have. You will be used to touch others with autism, and also parents….embrace the pain, the anxiety and sadness. They will all be turned for good as you and Jasan walk out your journeys. Bless you both!
Heidi Allen says
Thank you Tania! Beautiful. ??
Heidi–You do what you think is best for Jasan. He is his own special person and we need to respect him as that. I wish you BOTH the best.
the jay train says
I so get this. *hugs* … that’s all I’ve got.
Hi Heidi! Just read your latest post. Babysitting for grandkids this week-end and as you know our Sam has Asperger’s. He is about to complete 6th grade next week. He is doing very good with his classes but the social side is another story. And yes the bully’s have come out at this point. Kids that use to understand him have gone to bullying so they could fit in with the “in crowd”. So sad and my heart goes out to him. Just seems to always be something new around the corner. Just wanted you to know you are not alone in your trials. So many out there trying to feel their way in the autistic world. You do the best you can, and you are doing that in spades, and just LOVE THEM WITH ALL YOUR HEART! You, Jasan, and your parents have been in my prayers since that first week I picked him up for ECE. Hang in there, it will be worth the ride!