child

Waves of grieving.

This may be difficult to write.

I have to admit; I have definitely had a rough day. I am quite blessed to say that tough days where I let my emotions go down the negative path are few and far between. Today has been the exception to my positive streak. I am sure parents of special needs kids are here, where I am today, more often than not. Hence my decision to just sit and write.

I love my son more than I can even explain. I think that is why it feels so incredibly horrific when I have days like today. Days when I just give in to complete mental exhaustion. Why can’t I just have a day where I don’t feel like I am walking on eggshells? The mood swings can come out of nowhere and I some days feel like I am done with it. I am done with patience. I am done with overthinking. I am done with staying calm and looking at the bright side.

I wonder what it would be like to have him come to the grocery store with me and just comply? Or go to a movie with me and sit through the whole thing? Or be able to play like other kids do and just go be free for awhile? Or be able to handle a simplistic no? Not even a NO to something big. A NO to the smallest thing and here we go.

Mama has to tiptoe so that there is no meltdown.

I. am. so. tired.

This feels like a different stage for me. The toddler days are over. Now he is a little boy. His mind is maturing and wow things are different. Interacting with kids are different. I see how other kids AVOID him sometimes.

OUCH that hurts. A lot.

I do realize these are MY feelings, not his. I need to always put that forefront in my mind, but man, is it hard. I have bawled my eyes out driving home from friends’ homes where I thought that he would never be pushed away by the kids. Well, I was wrong. Big time. I had a little guy say to me (a situation where a bunch of kids were present, and obviously the boy didn’t realize I was Jasan’s mom) “Oh, HE isn’t staying the night, is HE?” with that annoyed tone.

HEART. BROKEN.

I have to realize the situation as it is. Not everyone sees Jasan as I do. This is a new stage of grieving for me, the ideas of a little boy and the things we would do and how life would be without autism. This experience of having a child is my only one. Every stage is a learning experience, but now with autism involved. Completely different than what I imagined pregnant with a little munchkin in my womb.

But even as I sit here and write this, he is playing with water in the sink. He just said the cutest thing to me and it is words coming out of his growing up self. Adorable. Completely. I look at him and all of this bullshit washes away.

I have been practicing the mantra, “EVERYTHING ALWAYS WORKS OUT FOR ME.”

I guess I am going to add, “EVERYTHING ALWAYS WORKS OUT FOR JASAN, TOO…”

Tomorrow is a restart. No more negative. Positivity and LOVE always win and bring the best into my life experience.

2014 Reflection…

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Well friends, we gloriously ended the year with the first lost tooth (happened on Christmas evening!) and an obsession with USBs…

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Shredding…

and even Pictionary!

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This is “Google” by the way…

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I love how he has changed even in just the last few weeks! Language is exploding and that is so very exciting to me. He is definitely GROWING UP. 🙂

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We have had LOTS of snuggle time. I think that is always secretly my favorite part, and always will be.

Uncle Todd (my younger brother who lives in AZ with his amazing and lovely girlfriend Jodi) were here! It was so fun to watch him watch Jasan. I realized how much I miss my brother and how I wish he could be around Jasan more often…

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I appreciate where Jasan and I are in life right now. It feels good. Amazing things are in the pipeline for this next year, and that is REALLY exciting. The amount of personal growth that I have experienced in 2014 is out of this world. I still feel so blessed to wake up next to the best gift every morning. He is such a huge reason for my smile. I love my little dude.

I want to increase the momentum of “Following Jasan” in this coming year. That is one of my goals. Life got unexpectedly busy in September of this year, in a good way, and my photography and writing had to slow down. I am aware of the fact that I miss it and need to make the time to focus on this part of our journey again.

I do have a few photos I wanted to share that I haven’t gotten a chance to blog about…

Thank you for taking time to share in our journey. I am looking forward to writing and photographing our stories of growth (and sometimes of struggle) with you to share my perspective on this journey of beautiful life and autism.

Cheers to 2015!