Love & Bedtime.

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I shot the photo above a few nights ago while Jasan was in bed with his flashlight. It’s part of our lengthy bedtime routine, but as long as we follow it, he goes to sleep without a problem. Usually, he falls asleep to music every night, but tonight he switched it up on me.

A couple of days ago he was perusing through the music on our iPad and came across this song. He has been stuck on it since he heard it. This was his request for sleeping music…this one song, on repeat. Because it is mellow and something he could most definitely fall asleep to, I obliged.

Up until tonight, part of his sleeping routine included dancing to one song before we turn off the small lamp in his room. Tonight was different though: he wanted me to hold him. I picked him up and cradled him in my arms. We danced around the room just like we used to when he was teeny tiny. (I used to dance with him to all different kinds of music when he was a baby. I would hold him, dance to the music and gently tap his body so he could feel the beats of the music through my hands and my body movements. Now that I know he is autistic, I am even happier that I made a point to do that daily. I am sure that is a lovely body memory for him.)

Tears started streaming down my face while I started listening to the lyrics of this song. (He loved the dancing so much that he requested it three times in a row. I couldn’t say no!) Each time I connected to something different. I know that this is a love song intended for a romantic relationship, but I’m changing it around tonight.

I have realized, on many different occasions now, how extremely connected my son and I are. He knows what is going on within me just as much as I know what is going on within him. There is something undeniable about our situation and our existence together. I have been in a bit of a funk all day, and so has he. But at the end of the day, when it is all said and done, here we are. Together. In our comfort zone, doing what we always do. God works through Jasan so much to speak to me.

The whisper I heard was to listen to these lyrics as if it’s my relationship with my autistic son. It’s beautiful, and it’s a journey. Having a child has shown me how deep love runs. Jasan has shown me how MIND BLOWING love IS. Real LOVE enhances our existence here on Earth. Having my son and embarking on this journey of self-discovery has brought me to a place of happiness that is hard to describe.

I Won’t Give Up

When I look into your eyes
It’s like watching the night sky
Or a beautiful sunrise
Well there’s so much they hold
And just like them old stars
I see that you’ve come so far
To be right where you are
How old is your soul?

I won’t give up on us
Even if the skies get rough
I’m giving you all my love
I’m still looking up

And when you’re needing your space
To do some navigating
I’ll be here patiently waiting
To see what you find

‘Cause even the stars they burn
Some even fall to the earth
We’ve got a lot to learn
God knows we’re worth it
No, I won’t give up
I don’t wanna be someone who walks away so easily
I’m here to stay and make the difference that I can make
Our differences they do a lot to teach us how to use the tools and gifts
We got yeah we got a lot at stake
And in the end, you’re still my friend at least we didn’t tend
For us to work we didn’t break, we didn’t burn
We had to learn, how to bend without the world caving in
I had to learn what I got, and what I’m not
And who I am

I won’t give up on us
Even if the skies get rough
I’m giving you all my love
I’m still looking up
I’m still looking up

I won’t give up on us
God knows I’m tough, he knows
We got a lot to learn
God knows we’re worth it

I won’t give up on us
Even if the skies get rough
I’m giving you all my love
I’m still looking up

I won’t give up when times get hard as a parent. I won’t give up trying to figure this autism thing out. When I get sidetracked in life sometimes, all I need to do is look into Jasan’s eyes. He is my focus. Continuing to unravel my layers and become more self aware in my own personal journey enhances how I relate to my son. There is no other way than to stay positive. I have made that choice for us.

I could have gone down another path and been frustrated with my “single mom with autistic kid” status, but no way. God did intend for Jasan and me NOT TO BREAK. We are learning to understand each other’s different realities, and the world is not going to bring us down. Jasan’s energy is addictive to others. He is going to BE SOMETHING GREAT. We are going to be a great team together. That’s my attitude. That’s my intention for him and how I will guide him.

If I don’t keep learning about who I am, we won’t grow together. As I learn and change, I become better for BOTH of us. When he ages and needs to go and navigate, I WILL be waiting for him. I WILL be here to guide him when he needs me to. I will always be his Mama rock. I will be his safe haven…his consistency. Unconditional love.

I needed that attitude adjustment tonight and our bedtime routine led me right to it.

Thank you son. Thank you for enriching my life more than you will ever know.

Happy Father’s Day to all the deserving fathers out there.

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8 comments

  1. This was such a beautiful post. Thank you for sharing it, and for the memories it’s stirred up.

    I danced my 2 into dreamland many a time, as well. After my daughter lost all her words, and before she’d begun to find them again, music was one of the few forms of communication we still had; we used to sing songs to each other (me with the words, she with the tune) and sometimes, she would even hold my face while we did it. She taught me how to sing from my heart, even if other people could hear me.

    My son never had any words, when he was a toddler; but he loved to laugh when I sang to him, and his mad dancing skills made themselves known before he could walk. He still loves to boogie with me (when he decrees it, of course!) and our dance is a bouncy, jaunty, energetic fling of joyful abandon; I didn’t know how to dance like that, before him. After a lifetime of living as a shy, wilting wallflower, he taught me what it is to dance like no one’s watching.

    I know you’ll agree with me when I say that we may be here to guide them; but oh! Surely they are here to teach us.

    –AmandaQuirky

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    1. Amanda, thank you so much for sharing this with me. I love how we can share these intimate moments/memories that we have with our children and that brings us together. As mothers it’s amazing how we connect to our children even when they have no words… ♥️

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  2. beautiful post 🙂 reminded me of Panayioti as a little tiny baby when I would make up songs to sing to him and stroke his back as we danced together. No wonder whenever he hears slow music he holds his hands up so I can pick him and we can dance 🙂

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  3. Photography, Singing, Writing, and Super-Mom… You are gifted and blessed. Excellent post, beautiful song, a fave of mine, cheers sweet lady 🙂

    Like

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